HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

www.cftexas.org/beatdystonia (for donations online)

BEAT DYSTONIA is housed by the stellar Communities Foundation of Texas. Communities Foundation of Texas traces its roots back to 1953. Since that year, more than $1 billion in grants have been made by the Dallas-based foundation. It has grown along with North Texas to become one of the largest community foundations in the nation.

For more information on how to donate to BEAT DYSTONIA, here is the main page:

http://www.cftexas.org/NetCommunity/Page.aspx?pid=183

WE NEED YOUR SUPPORT. Thanks!

WE ARE ALL PRO BONO. 1% overhead for clerical costs.

Email: beatdystonia@me.com
Twitter: @beatdystonia and @auntrogers
My Space: Beat Dystonia

If you have any questions, please call 323.251.1021

Please check out ASEA. A portion goes to the BEAT DYSTONIA fund.
http://www.teamasea.com/beatdystonia

ALL QUESTIONS WELCOME! It has helped me greatly!
Talk to your doctors before taking it since we are all on different medications.



Dystonia is an orphan disorder that needs more money for research.

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Los Angeles, New York, Dallas/Fort Worth, United States
I am the founder of BEAT DYSTONIA (501)(c)(3) and work daily on awareness, fundraising and personal advocacy. You are not alone and do not hesitate to post or reach out. I'm here and focused on our collective wellness.

Thursday, September 17, 2009

Now I am runner?


I was diagnosed with a NOT rare disorder called Dystonia in 2008.
What a strange disorder. I was in a wheelchair, for God's sakes.

I have more difficulty walking than I do running, so (of course) I started running
a mile and half daily and am building up more and more if it feels good.

I will not bore you with you the state of my spine, but running seemed impossible, so
I thought I should do it. Why not?

I run the Greenway Parks circuit and love it. I grew up there and so it is a run with
many, many great childhood memories.

Pictured: Jen Baers, who will be doing the L.A. Triathlon for Dystonia (and me)
Posted by at 1:07 AM
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2 comments:

  1. How does one sign up to volunteer to sell t-shirts and hand out flyers on Oct. 4th? I would like to join in the cause. Rogers, I think it is amazing that you are doing the L.A. Triathlon... simply outstanding and amazing. More power to you!

    Ellsworth's granddaughter

    ReplyDelete

  2. You are much more than a runner - you are a SUPER-STAR/ROCK-STAR!!! Go get 'em girl!

    ReplyDelete

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The Little Hartmanns -- the loves of my life.

The Little Hartmanns -- the loves of my life.