BEAT DYSTONIA (501)(c)(3): From my niece -- BIG love for her!

HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

www.cftexas.org/beatdystonia (for donations online)

BEAT DYSTONIA is housed by the stellar Communities Foundation of Texas. Communities Foundation of Texas traces its roots back to 1953. Since that year, more than $1 billion in grants have been made by the Dallas-based foundation. It has grown along with North Texas to become one of the largest community foundations in the nation.

For more information on how to donate to BEAT DYSTONIA, here is the main page:

http://www.cftexas.org/NetCommunity/Page.aspx?pid=183

WE NEED YOUR SUPPORT. Thanks!

WE ARE ALL PRO BONO. 1% overhead for clerical costs.

Email: beatdystonia@me.com
Twitter: @beatdystonia and @auntrogers
My Space: Beat Dystonia

If you have any questions, please call 323.251.1021

Please check out ASEA. A portion goes to the BEAT DYSTONIA fund.
http://www.teamasea.com/beatdystonia

ALL QUESTIONS WELCOME! It has helped me greatly!
Talk to your doctors before taking it since we are all on different medications.

Friday, October 23, 2009

From my niece -- BIG love for her!

i love you sooo much i am wearing your distonia shirt tomorrow at the zoo so every one can see

BREAKING NEWS:

my zoo trip was canceled but i am wearing that shirt next time we go to the zoo love u

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BEAT DYSTONIA mission statement

TO RAISE GLOBAL AWARENESS, FUNDING FOR SCIENCE AND TO PERSONALLY ADVOCATE.

TO LEAVE NO ONE BEHIND.

BEAT DYSTONIA press is happily ongoing.

The awareness related to BEAT DYSTONIA is key for all of us.

Zero cost.

All monies for research grants will be overseen by well-respected Dystonia researchers and doctors in the world, so monies are going to the most pressing and cutting edge research.

As far as referrals, I have numerous top specialists that I speak with regularly and they have all been willing to make referrals for those who are undiagnosed or misdiagnosed. I advocate as a fellow patient and then I let the good doctors do their thing.

Mutual support is so key for all of us -- as is a more appropriate amount of money that should be allocated for Dystonia.

You are not alone in this. This is NOT RARE -- it is an orphan disorder. I will keep saying that until it changes.

Best,

Rogers Hartmann

Founder of BEAT DYSTONIA

BEAT DYSTONIA media

Here is a smidge of ongoing BEAT DYSTONIA media:

(there is much more and if you want DVDs or links, let us know.)

OPRAH:

http://www.oprah.com/media/20090319-tows-rogers-dystonia

THE TODAY SHOW:

http://today.msnbc.msn.com/id/26184891/vp/30026162#30027725

MY TED SPEECH:

http://www.tedxsmu.org/2009/12/16/rogers-hartmann/

Overview of most media:

(Oprah, The Today Show with Meredith Vieira, TED, Fox affiliates, NBC affiliates, ABC, TLC, local and national magazines and newspapers, AOL Health, Livestrong, etc...)

HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

Dystonia is an orphan disorder that needs more money for research.