Hello tribeswomen and tribesmen,
If you have been tested positive for the DYT1 gene or have been told that that
is most likely the cause of your Dystonia, please go to the bottom of this
page and register. OR consider being tested for it if you think that you may have it.
Rick Staab of Tyler's Hope has spearheaded this registry and Anne Soeder
is key in furthering the usefulness of this much needed registry.
The U.S. Government will be helpful in all efforts to maintain this database.
It will help with research that will ideally, lead to better treatments and one day a cure.
Come on!
www.dipregistry.com
We have a big conference call in the morning to discuss all aspects of the registry.
Lastly, I will let everyone know the moment I am told that my TED speech has launched.
Love,
Rogers
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