HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

www.cftexas.org/beatdystonia (for donations online)

BEAT DYSTONIA is housed by the stellar Communities Foundation of Texas. Communities Foundation of Texas traces its roots back to 1953. Since that year, more than $1 billion in grants have been made by the Dallas-based foundation. It has grown along with North Texas to become one of the largest community foundations in the nation.

For more information on how to donate to BEAT DYSTONIA, here is the main page:

http://www.cftexas.org/NetCommunity/Page.aspx?pid=183

WE NEED YOUR SUPPORT. Thanks!

WE ARE ALL PRO BONO. 1% overhead for clerical costs.

Email: beatdystonia@me.com
Twitter: @beatdystonia and @auntrogers
My Space: Beat Dystonia

If you have any questions, please call 323.251.1021

Please check out ASEA. A portion goes to the BEAT DYSTONIA fund.
http://www.teamasea.com/beatdystonia

ALL QUESTIONS WELCOME! It has helped me greatly!
Talk to your doctors before taking it since we are all on different medications.



Dystonia is an orphan disorder that needs more money for research.

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Los Angeles, New York, Dallas/Fort Worth, United States
I am the founder of BEAT DYSTONIA (501)(c)(3) and work daily on awareness, fundraising and personal advocacy. You are not alone and do not hesitate to post or reach out. I'm here and focused on our collective wellness.

Thursday, November 5, 2009

Generation Rescue is NOT keeping their word


I was 100% assured by GENERATION RESCUE employees that their new president
was going to call me today and that they had confirmed that with her.

I am now told that that is not happening. After the promises were made.

They stated that they are not affiliated with the cheerleader, but they are
keeping the posting up about her, still as if she has Dystonia.

I am reaching out in peace to them and they are not stepping up.

There are more things at stake than they may not even be aware of...

I wish I had better news about people taking responsibility for a huge
mistake that was made in the non-profit world.

It's too bad that they will not talk it through and figure out how to rectify
various facets of the issue.

I will say. I did expect more from Jenny McCarthy.

We are all fighting to discover underlying causes and ways to heal.

It's about doing what is right.
Posted by at 4:39 PM
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The Little Hartmanns -- the loves of my life.

The Little Hartmanns -- the loves of my life.