HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

www.cftexas.org/beatdystonia (for donations online)

BEAT DYSTONIA is housed by the stellar Communities Foundation of Texas. Communities Foundation of Texas traces its roots back to 1953. Since that year, more than $1 billion in grants have been made by the Dallas-based foundation. It has grown along with North Texas to become one of the largest community foundations in the nation.

For more information on how to donate to BEAT DYSTONIA, here is the main page:

http://www.cftexas.org/NetCommunity/Page.aspx?pid=183

WE NEED YOUR SUPPORT. Thanks!

WE ARE ALL PRO BONO. 1% overhead for clerical costs.

Email: beatdystonia@me.com
Twitter: @beatdystonia and @auntrogers
My Space: Beat Dystonia

If you have any questions, please call 323.251.1021

Please check out ASEA. A portion goes to the BEAT DYSTONIA fund.
http://www.teamasea.com/beatdystonia

ALL QUESTIONS WELCOME! It has helped me greatly!
Talk to your doctors before taking it since we are all on different medications.



Dystonia is an orphan disorder that needs more money for research.

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Los Angeles, New York, Dallas/Fort Worth, United States
I am the founder of BEAT DYSTONIA (501)(c)(3) and work daily on awareness, fundraising and personal advocacy. You are not alone and do not hesitate to post or reach out. I'm here and focused on our collective wellness.

Friday, November 6, 2009

NOT DYSTONIA -- as suspected.


Soon this story with so many inconsistencies will fade,

but awareness about Dystonia will not.

We HAVE un-rung the bell that Dystonia is in our heads (i.e. psychogenic).
I know people still face the psychogenic diagnosis and that must be rough
when one is in so much pain.

Luckily, the cheerleader was finally properly diagnosed after continuing to claim Dystonia.

So, as suspected she has something else going on.

My hope was that Generation Rescue (Jenny McCarthy) would have a productive
and positive chat with about all that was going on in the press -- they promised we would have
a call and then McCarthy bailed. They also continue to say that they have ZERO affiliation with the cheerleader, but the posting remains on their home page.

As with anyone who is suffering, I hope the cheerleader finds the right doctor.

That is key.

Onward and upward.

(Pic above is the newest Hartmann)

1 comments:

  1. Thank you, Rogers, for being such a fearless leader to those with or without Dystonia. Your actions alone speak volumes. The way you have handled all of this = class act.

    "If the only prayer you ever say in your entire life is thank you, it will be enough."
    -Meister Eckhart

    And, that new addition to the Hartmann family is adorable.

    ReplyDelete

The Little Hartmanns -- the loves of my life.