HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

www.cftexas.org/beatdystonia (for donations online)

BEAT DYSTONIA is housed by the stellar Communities Foundation of Texas. Communities Foundation of Texas traces its roots back to 1953. Since that year, more than $1 billion in grants have been made by the Dallas-based foundation. It has grown along with North Texas to become one of the largest community foundations in the nation.

For more information on how to donate to BEAT DYSTONIA, here is the main page:

http://www.cftexas.org/NetCommunity/Page.aspx?pid=183

WE NEED YOUR SUPPORT. Thanks!

WE ARE ALL PRO BONO. 1% overhead for clerical costs.

Email: beatdystonia@me.com
Twitter: @beatdystonia and @auntrogers
My Space: Beat Dystonia

If you have any questions, please call 323.251.1021

Please check out ASEA. A portion goes to the BEAT DYSTONIA fund.
http://www.teamasea.com/beatdystonia

ALL QUESTIONS WELCOME! It has helped me greatly!
Talk to your doctors before taking it since we are all on different medications.



Dystonia is an orphan disorder that needs more money for research.

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Los Angeles, New York, Dallas/Fort Worth, United States
I am the founder of BEAT DYSTONIA (501)(c)(3) and work daily on awareness, fundraising and personal advocacy. You are not alone and do not hesitate to post or reach out. I'm here and focused on our collective wellness.

Sunday, December 6, 2009

The Dystonia Coalition

Here are the straight forward facts about the Dystonia Coalition that is funded by the NIH.

H.A. Jinnah, MD, PhD, professor of neurology and human genetics at Emory University School of Medicine, will direct the Dystonia Coalition, with Joel Perlmutter, MD, professor of neurology and radiology at Washington University School of Medicine, as co-director.

The list of participating foundations and patient advocacy groups will be announced, as well.

Finally, the logo and the mission statement should be posted by all groups involved at the same time. This information will be released shortly.

There is not one group that is controlling it. As stated above, it is overseen by Jinnah and Perlmutter and all organizations have an equal role in this project.

No photo on this one. This is crucial information that all should know.

Best,
Rogers Hartmann
BEAT DYSTONIA

1 comments:

  1. Debbie LivengoodDec 8, 2009 08:36 AM

    Rogers,

    Thanks for working so very hard on this and for keeping the rest of us posted on what is going on. Really appreciate it.

    ReplyDelete

The Little Hartmanns -- the loves of my life.