HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

www.cftexas.org/beatdystonia (for donations online)

BEAT DYSTONIA is housed by the stellar Communities Foundation of Texas. Communities Foundation of Texas traces its roots back to 1953. Since that year, more than $1 billion in grants have been made by the Dallas-based foundation. It has grown along with North Texas to become one of the largest community foundations in the nation.

For more information on how to donate to BEAT DYSTONIA, here is the main page:

http://www.cftexas.org/NetCommunity/Page.aspx?pid=183

WE NEED YOUR SUPPORT. Thanks!

WE ARE ALL PRO BONO. 1% overhead for clerical costs.

Email: beatdystonia@me.com
Twitter: @beatdystonia and @auntrogers
My Space: Beat Dystonia

If you have any questions, please call 323.251.1021

Please check out ASEA. A portion goes to the BEAT DYSTONIA fund.
http://www.teamasea.com/beatdystonia

ALL QUESTIONS WELCOME! It has helped me greatly!
Talk to your doctors before taking it since we are all on different medications.



Dystonia is an orphan disorder that needs more money for research.

My Photo
Los Angeles, New York, Dallas/Fort Worth, United States
I am the founder of BEAT DYSTONIA (501)(c)(3) and work daily on awareness, fundraising and personal advocacy. You are not alone and do not hesitate to post or reach out. I'm here and focused on our collective wellness.

Monday, December 7, 2009

DYSTONIA COALITION


As of today, the DYSTONIA COALITION logo is up on our site.

We are thrilled to unite with the various foundations and patient advocacy groups that are involved, so that we can tackle the many challenges of Dystonia head on and in concert.

And we have a great leader in Dr. Buz Jinnah in overseeing management of the NIH funds, matching funds and in general, overall ideas about how to better serve the Dystonia community.

More information and press releases to follow.

Great news for all of us! A united front.


Posted by at 9:51 AM
Labels: , , , ,

2 comments:

  1. This is big news! I know you'll keep us updated on everything. I can't say thank you enough, Rogers.

    ReplyDelete
  2. Debbie LivengoodDec 7, 2009 11:53 AM

    This is great news. It brings so much hope to people and for me anyway, excitement that so much seems to be happening since the press started reporting about dystonia on Oprah, Today Show, etc...it is very nice that so much awareness is happening in the world. I am so grateful!

    ReplyDelete

Subscribe to: Post Comments (Atom)

The Little Hartmanns -- the loves of my life.

The Little Hartmanns -- the loves of my life.