As we go into high gear fundraising, BEAT DYSTONIA has a renewed mission statement.
"To raise awareness, money for science, and to advocate for those who would otherwise be left behind."
As everyone knows, we are very patient-oriented since a number of us with BEAT DYSTONIA have various presentations of Dystonia.
Donations can be made to http://www.cftexas.org/beatdystonia
Any amount is appreciated.
In short, funding is important and our allocations will be very transparent. I have ST, but I honestly, have been more focused on other presentations that are more debilitating.
As always, huge thanks to Emily Novick for her unending support and partnership.
And she will wallop me for posting that, but I don't care.
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Very powerful statement!
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~ Ellsworth's granddaughter.
The date you posted this -- Jan 19th -- was my grandfather's birthday (Lowell Ellsworth). He lived to be 93... so this year, he would have been 107.)
With your tenacity, Rogers, a cure will be found so everyone lives to be 93!