HOW TO DONATE to BEAT DYSTONIA (501)(C)(3)

www.cftexas.org/beatdystonia (for donations online)

BEAT DYSTONIA is housed by the stellar Communities Foundation of Texas. Communities Foundation of Texas traces its roots back to 1953. Since that year, more than $1 billion in grants have been made by the Dallas-based foundation. It has grown along with North Texas to become one of the largest community foundations in the nation.

For more information on how to donate to BEAT DYSTONIA, here is the main page:

http://www.cftexas.org/NetCommunity/Page.aspx?pid=183

WE NEED YOUR SUPPORT. Thanks!

WE ARE ALL PRO BONO. 1% overhead for clerical costs.

Email: beatdystonia@me.com
Twitter: @beatdystonia and @auntrogers
My Space: Beat Dystonia

If you have any questions, please call 323.251.1021

Please check out ASEA. A portion goes to the BEAT DYSTONIA fund.
http://www.teamasea.com/beatdystonia

ALL QUESTIONS WELCOME! It has helped me greatly!
Talk to your doctors before taking it since we are all on different medications.



Dystonia is an orphan disorder that needs more money for research.

My Photo
Los Angeles, New York, Dallas/Fort Worth, United States
I am the founder of BEAT DYSTONIA (501)(c)(3) and work daily on awareness, fundraising and personal advocacy. You are not alone and do not hesitate to post or reach out. I'm here and focused on our collective wellness.

Wednesday, February 24, 2010

My top 10 side effects related to Dystonia


1. Spilling pretty much every beverage that I drink.
2. Dropping my napkin about 10 times during a meal.
3. Stepping on my dog's tail.
4. Laughing more.
5. Using made up words on purpose.
6. Often looking like a French spy.
7. Reading more.
8. Not watching much television.
9. Having some pretty spectacular falls in front of large groups of people.
10. Laying on any floor at any time and at any location.
Posted by at 1:56 PM
Labels: , , ,

3 comments:

  1. I have dystonia in association with Parkinson's Plus. It manifests itself as a dystonic tremor, which takes the form of head nodding and trunk shaking nearly every minute of my waking life. Do you have any information about this condition that I may not have heard? Thanks for the shirts! We wear them with pride.

    ReplyDelete

  2. You might want to add to your list:

    11. Looking like a rock star laying low on a bed of red pillows in Palm Springs.

    ReplyDelete

  3. I love this post. Very funny. I can relate. I step on my dog's tail all the time and I am pretty sure she is strategically arranging her toys on the floor to get back at me. I have had many trips and they are out to get me!

    ReplyDelete

Subscribe to: Post Comments (Atom)

The Little Hartmanns -- the loves of my life.

The Little Hartmanns -- the loves of my life.