Howdy on a Thursday

With or without Dystonia in one's life, or anything challenging or really just living, the last thing we need is negativity within the tribe.

I deeply love being of support to people and feel grateful when accepting support.

I am no wonder woman, so support coming this way is always a gift.

IMAGINE PEACE.

Rogers

xo

BEAT DYSTONIA Advocacy Call Minutes from 3/14/2010

Advocacy Call – March 14, 2010 @ 2PM EST

Hosted By BEAT DYSTONIA

Moderated by Rogers Hartmann

BEAT DYSTONIA Update

(the minutes have been edited for privacy reasons)

New Website

Work on the new BEAT DYSTONIA website is underway. The site will be more interactive.

Press Update

Additional press and media opportunities are in the works. Rogers will be the commencement speaker at her alma mater. Part of her speech will be about Dystonia and the video will be posted after the commencement.

Additionally, a special television show will start shooting within the month.

Interactive Discussion Topics

Dystonia and Relationships

Rogers shared her experience in how Dystonia affected her relationship. Some difficulties discussed included being self-conscious about Dystonia and the hindrance those feelings can have on dating, relationships, and meeting people.

Physical Therapy

Physical therapy can be of great help to patients, although it is important to have the right physical therapist (speak with and get a referral from your neurologist to make sure you will not be doing anything which could potentially hurt you). Rogers shared her current success with physical therapy which she has been doing 3 times a week. Her PT has prior experience treating a Dystonia patient. She has been able to walk upright several times and continues to improve.

Communication with your Doctor

Rogers asked if patients felt timid about calling their doctor with questions. A suggestion is to ask your doctor at your next appointment if it would be ok to contact him/her or their assistant via phone or email in the event that questions or issues come up in between appointments.

Rogers continues to refer patients to specialists all over the world.

Insurance Issues

Determining what your insurance policy covers or excludes can be difficult due to the length and complexity of coverage documents. It is important to pay attention to coverage details.

Rogers concluded the call with a quote:

In the infinity of life where I am,

all is perfect, whole, and complete.

I no longer choose to believe in old limitations and lack.

I now choose to begin to see myself

as the Universe sees me -- perfect, whole, and complete.

The truth of my Being is that I was created

perfect, whole, and complete.

I will always be perfect, whole, and complete.

I now choose to live my life from this understanding.

I am in the right place at the right time, doing the right thing.

All is well in my world.

-Louise Hay

TWITTER change for BEAT DYSTONIA 501c3

Hello all,

If you follow the most up to date BEAT DYSTONIA details and you

are on Twitter, switch over to beatdystonia from auntrogers.

Thanks!

There will be some excellent tweets this weekend.

Big thanks for the ongoing support from so many of you.

It has been overwhelming in a GREAT way.

Rogers

xoxo

BEAT DYSTONIA ADVOCACY CALL is TOMORROW

The BEAT DYSTONIA advocacy/support/laugh a little or a lot call is

TOMORROW!

Sunday, March 14th

11am PST, 12 Mountain time, 1pm CST, 2pm East Coast time

7pm UK time

DO NOT FORGET THAT IT IS DAYLIGHT SAVINGS TIME

SO, TONIGHT SET YOUR CLOCKS ONE HOUR FORWARD

If you are unable to speak and want to be heard please email your questions

and comments to beatdystonia@me.com and I will speak for you.

Here is the dial-in information:

Dial (219) 509-8111

Your access code is 7949110

Looking forward to it!

Rogers

xo

(For those of you familiar with Skype, use it -- very cost efficient)

Teaching the youngers -- courtesy of Sullivan

The text below is from Sullivan's adorable mom, Trish.

Last Friday on Sullivan's "share" day in class, her teacher pulled up your blog and they read it!

She was so proud, she was beaming.

Thank you again.

Hugs, T.