Happy New Year from Down Under!
This has been an amazing year for me. I have had the privilege of becoming officially involved with Parkinson’s Australia, and hopefully through my radio and other interviews, and involvement in workplace education, I am helping to change the perception of Early Onset Parkinson’s and Dystonia. So many people see both conditions as a freak of nature – the lack of knowledge, particularly about Dystonia, continues to worry me. However, we WILL get the message across that Dysto-dudes and dudettes are not under a death sentence – Dystonia and Parky are just THERE in our lives and we cope really, really bloody well!
I am particularly chuffed that I am managing to cope alone at present, with my husband being in Afghanistan serving his country with the Royal Australian Navy. I am immensely proud of him – and of myself, for living my Dysto-life the best possible way while he is absent.
There is no way that I could ever be as sane (?) as I am without my beautiful Rogers. She continues to inspire, enlighten and most of all make me laugh hysterically. Thank you Rog – you are awesome. And also Bailey, my Dysto-daughter – the two of you have given me so many gifts this year, with your fabulous laughter and understanding.
To all out there struggling with the challenges Dystonia and Parkinson’s presents, I can only say this; I am with you all the way on the frustration, the pain and the ceaseless explaining you do to strangers. But there WILL be a cure – and I just know that it won’t be 20 or 30 years from now. With hope and strength for 2012 and beyond from the Dysto-Wonder Down Under,
Kate S-C xxx
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Great post, so encouraging!! I too have Dystonia with early onset parkinsonism and believe a cure is not too far. www.questofthenocturnalbaker.blogspot.com
ReplyDeleteI love BEAT DYSTONIA. It seems to be the only group that has no politics and I always feel better after reading anything on here and on the Facebook page. Thank you.
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